Friedreich’s Ataxia Research Alliance Europe

FARA Europe

We believe that transformative change lies at the intersection of people and science.

Facilitating Friedreich’s Ataxia Research Globally

FARA Europe’s mission is to treat and cure Friedreich’s ataxia (FA) by marshaling and focusing European and global resources and relationships, by advancing treatments that will slow, stop and reverse FA, by empowering researchers and persons living with FA and by facilitating clinical research across the globe.

It is estimated that there are 7,000-10,000 individuals with FA throughout Europe and 15,000-20,000 globally. Achieving our mission will have a profound impact on the quality of life of those individuals diagnosed with FA as well as their family members and caregivers.

This mission will be accomplished by raising funds for research, promoting awareness, and supporting scientists, clinical networks, government agencies, pharmaceutical companies and other FA organizations that share the same mission.

Nederlands